tag:blogger.com,1999:blog-5248101319829846491.post3662803127313620315..comments2024-01-22T00:46:35.341-08:00Comments on Our Diabetic Life: Continuing the mySentry dialog.Merihttp://www.blogger.com/profile/09752883120541646427noreply@blogger.comBlogger18125tag:blogger.com,1999:blog-5248101319829846491.post-20086877314416256042012-01-25T07:42:56.543-08:002012-01-25T07:42:56.543-08:00Hi Kim! Did you see this post I wrote the other d...Hi Kim! Did you see this post I wrote the other day? http://www.ourdiabeticlife.com/2012/01/cgm-quality-sleep-not-quantity-sleep.html<br />It talks all about our experience with the CGM. Every kid adjusts differently to it, I totally feel your pain. 3 1/2 is so little, there is just no way to know for sure if he'll agree to wear it. But, it doesn't mean that a year down the road he won't feel differently. There are so many things to weigh here, I wish I could give you a definitive answer! Hope the CGM blog post helps!Merihttps://www.blogger.com/profile/09752883120541646427noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-23848027349369823202012-01-25T07:18:28.600-08:002012-01-25T07:18:28.600-08:00I forgot to sign my name at the end of my post! I...I forgot to sign my name at the end of my post! It's Kim by the way. Thanks Again!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-12268797091018209532012-01-25T07:16:05.843-08:002012-01-25T07:16:05.843-08:00Meri Thank you so much for posting on mysentry!!! ...Meri Thank you so much for posting on mysentry!!! My son was just diagnosed with type 1 diabetes this past september and we are in the process of starting the pump. Actually the pump just came yesterday (minimed revel) very excited but nervous at the same time. I've been stressing over this new mysentry device. One its very expensive but also at the same time feel that it is very worth it. On the other hand the pump is all new to my son, Kyle (3 1/2 yrs old), and hope that he adapts to it. Which I think he will, but not sure about the CGM. If he doesn't feel comfortable wearing the CGM then I'm stuck with a very expensive product. I have until the end of this month to decide if I want to get it for a dicounted price of $1900 otherwise I have until April to get it for a price of $2400. They are giving me an extra $500 off the $2400 because of buying everything at once (pump and the cgm) Stressing out!! I really don't want to miss out of the extra $500 hundred off. But, on the the hand like I said before don't know if he will wear the CGM. How did your son's adapt to wearing the CGM in the beginning? <br /><br />Thanks Again for sharing your experience and love your website!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-44775028382013540452012-01-24T12:13:55.378-08:002012-01-24T12:13:55.378-08:00Thanks for posting. I think the MYSentry is great,...Thanks for posting. I think the MYSentry is great, since neither Medtronic nor Dexcom seem to be able to allow for volume changes on the original cgms device. Expensive, yes, but worth every penny and I do hope Medtronic will package all three together cgms, pump with MYSentry when you order the initial pump; that way, insurance may be more inclined to pay for it. Very educational post and great idea using a stuffed animal to demonstrate sensor, cgms. Looks like the "seashell" part of the device is a lot smaller than when we used the Minimed cgms. Wonder if that is the Enlite sensor.... Yes, like your new website design very much. Cute.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-3940417424077988912012-01-23T11:54:42.961-08:002012-01-23T11:54:42.961-08:00Love it! All of it! The mySentry, the new look a...Love it! All of it! The mySentry, the new look and you! Great information! I sure hope Dexcom is working on this....!!Hallie Addingtonhttps://www.blogger.com/profile/11331775099035220917noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-41209305489448556842012-01-22T18:29:27.038-08:002012-01-22T18:29:27.038-08:00LOVE the new look Meri! Rock on! The pics of the...LOVE the new look Meri! Rock on! The pics of the guys up top make me smile... :-)Scott K. Johnsonhttps://www.blogger.com/profile/17881833642347872927noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-1601306518072672642012-01-22T11:54:18.463-08:002012-01-22T11:54:18.463-08:00thanks for keeping us updated, meri! :)
and i LOV...thanks for keeping us updated, meri! :)<br /><br />and i LOVE your redesign!!!Jesshttps://www.blogger.com/profile/12389672426152872555noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-31602430237737328092012-01-21T16:50:14.505-08:002012-01-21T16:50:14.505-08:00I am a newer reader to your blog and you have been...I am a newer reader to your blog and you have been a great inspiration to me. I often find myself thinking, "she gets me! that's exactly the way I feel!" Our middle son wears the CGM every week, we put it on on Sundays, it goes off on Saturday nights so he gets a little break and he wears it on his arm. It really helped us in seeing trends over time. We received some really great training from Medtronic that helped us use the CGM better on his body too. We are already working with our doctor, Medtronic, and our insurance and hoping the coverage comes quickly!Jennifer Anoreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-30352553570446707642012-01-20T21:57:07.717-08:002012-01-20T21:57:07.717-08:00Oh, and by the way: Love the new look of the blog,...Oh, and by the way: Love the new look of the blog, Meri!!!Mike Hoskinshttps://www.blogger.com/profile/06551066714605052991noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-18562148165805625462012-01-20T21:56:19.843-08:002012-01-20T21:56:19.843-08:00Thanks for sharing your perspective on this, Meri!...Thanks for sharing your perspective on this, Meri!Mike Hoskinshttps://www.blogger.com/profile/06551066714605052991noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-7363010253636100252012-01-20T18:49:45.359-08:002012-01-20T18:49:45.359-08:00thank you so much for sharing this! even though we...thank you so much for sharing this! even though we are on the Animas Ping, I am interested in how this all works. sounds FANTASTIC!sky0138https://www.blogger.com/profile/02085600646732450220noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-50484766600667031652012-01-20T13:14:39.976-08:002012-01-20T13:14:39.976-08:00I have lost signal a few times. When that happens...I have lost signal a few times. When that happens, there are a few things we can do. One, wait for them to roll over and endure the alarms until the outpost gets a signal again. Two, mute the alarm all together. Three, go in there and flip the kid over. None are ideal. :( During the day when the boys are at school we let it run and just mute the alarms altogether. We could unplug, but this is a much easier solution. Hooray for thumbs up!Merihttps://www.blogger.com/profile/09752883120541646427noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-69568744131025350462012-01-20T12:02:15.471-08:002012-01-20T12:02:15.471-08:00Meri, you can't imagine how helpful it is for ...Meri, you can't imagine how helpful it is for me to hear all of your feedback on this. It is a huge decision to purchase one at this point, and I'm so happy to hear from someone who I totally trust to say it like it is. I'm crossing my fingers that one day soon you will be able to view all 3 of your sweeties on one screen :) Thanks for answering all of our questions!Mistyhttps://www.blogger.com/profile/17818861980843167968noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-17834471626306154492012-01-20T11:14:03.322-08:002012-01-20T11:14:03.322-08:00Have you had any issues in the middle of the night...Have you had any issues in the middle of the night with it losing signal? What do you do with it during the day when the child is gone? Do you unplug it or turn it off or just let it run? I just recieved mine yesterday and used it for the first time last night. I am picking up Nash all over the house also. Which is just amazing. I did loose signal last night but it was because the cgm got lost from the pump. (lost sensor) Nash decided that he wanted to wrap the pump around him a couple of times. So far I give it a huge thumbs up also.Cameran Littlenoreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-19859691745474896822012-01-20T10:13:20.017-08:002012-01-20T10:13:20.017-08:00Sarah, I don't often feel comfortable bolusing...Sarah, I don't often feel comfortable bolusing by CGM alone. There have been special situations when we are out and about, like at the beach, or at the movie theater, and the graph shows that they are going up and we gave a small bolus until it was convienient to check with the meter. As for basal changes, last night I did a temp basal of 0 for 30 minutes. He was 99, and the graph showed and arrow going down. I rechecked in an hour though, because the mySentry kept alarming and perdicting a low. He came up just fine, and then the alarms stopped. The arrows do make an impact on my plan of action. I think of it as making a more informed decision, on food and boluses. With the CGM there is a fine line between helpfulness and annoying-ness. You have to have the settings just right in the pump, or it will alarm all night long...and that defeats the purpose. Even though the child is getting better care, way less sleep is a steep trade off. I haven't gotten to the point of checking less on the littles, but I imagine when I put it on 14 year old J, it will be a different story.Merihttps://www.blogger.com/profile/09752883120541646427noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-69066676613757680512012-01-20T09:47:34.327-08:002012-01-20T09:47:34.327-08:00now that our insurance is covering CGM (we've ...now that our insurance is covering CGM (we've been buying it all out of pocket) we can put that cost to a MySentry...so here's my question - do you feel comfortable bolusing without checking, or raising/lowering basals without doing a BG check? I know we are supposed to ALWAYS check before making a decision, I just wonder if seeing the graph constantly would make me want to check more and tweak more. KWIM?Sarahhttps://www.blogger.com/profile/03210820513382353417noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-5188099810729224702012-01-20T09:37:48.050-08:002012-01-20T09:37:48.050-08:00Very interesting! Thanks for sharing your insight...Very interesting! Thanks for sharing your insight! I LOVE your new blog by the way. :-)NikDuckhttps://www.blogger.com/profile/00339827779693006419noreply@blogger.comtag:blogger.com,1999:blog-5248101319829846491.post-89095276293587330342012-01-20T09:34:12.027-08:002012-01-20T09:34:12.027-08:001) I love your blog!!! It's going to be BEAUT...1) I love your blog!!! It's going to be BEAUTIFUL!!!!<br /><br />2) It's good to hear that people can pay $50/month. That brings it back down to size and makes it much more accessible for run of the mill working families.<br /><br />3) Love that he's represented with a beard. HA HA HA HA HA!!!!<br /><br />4) Ooo...IOB on the screen would be SUPERFAB!! Hope they pay attention to that suggestion.<br /><br />5) You're amazing. That is all :)Anonymoushttps://www.blogger.com/profile/16704298016041843194noreply@blogger.com