Sunday, June 3, 2012

Tripping on basals

Do you hear it?  It is the swooshing of insulin, tiny little puffs, certainly going off right this minute delivering insulin to my boys.  The sweet nectar of life.  Swish, puff, drip...insulin is constantly being delivered via their insulin pumps 24/7.  It is called BASAL insulin and it is a tricky little sucker to control.  It is the insulin that works in the background.  It doesn't cover their meals, it simply keeps them alive.  The changes made to this basal insulin generally needs to be very minute...it is a delicate process.  A delicate process that sometimes requires much trial and error. 

I think by now you should all know how I feel about adjusting basals...

(When I get really upset I do this thing I like to call the "frustrated Yeti."  It is a gurgling noise that sounds like it comes from the back of my throat, but really it comes from my soul.  I'm  Yeti-ing all over the place people.)

But...

Summer cometh!  And as such, so doth the basal changes!

It happens like clockwork every year for our family.  Last day of school and WHAM!  High blood sugars.  A new routine means new basal changes for the boys.

It is a necessary evil that comes along with Our Diabetic Life.

I made basal adjustments on L and B, JUST before we left on our little vacation last week...fun!

To make up for the lack of basal lately, I've been rage bolusing at every meal.  Rage bolusing means bolusing WAY more than needed to make up for the extra insulin needs the change of year/routine requires.

Now that I've changed basals, I need to dial down my raging and find the sweet spot.  That takes trial and error, and leave it to me to pick the days we are going on vacation to do said trials and errors...

Boo yeah!  I'm wicked wild like that!

We've seen more lows the past three days than we have seen in the past three months.  Not cool...but a bit of a relief not seeing so many highs.  I now feel confident enough to bolus what I SHOULD be bolusing at meals, rather than padding the boluses to compensate for the lack of basal.

(In my world...that means progress!)

Poor J had to learn the hard way when it is right to change basals.  As you may or may not be aware, J is 95% on his own diabetes wise.  He counts his own carbs, he boluses himself, he changes his own sets.  He does it all.  When we were in Santa Cruz this weekend, and we all had some ice cream on the boardwalk, I asked J how much he bolused for it. 

"40 carbs," was his reply.

"Huh," I said.  "I bolused the littles 60 carbs."

"Trust me mom...I'm always right."

And you know what...he usually IS always right.  But man, that one little mistake brought him to the high 400's.  Somewhere he hasn't seen in a long while.  He was MISERABLE.  He refused dinner and would only drink water. He was whiter than usual, he had the chills and felt crappy from head to toe.  I had him sit next to me while I ate dinner and we had a heart to heart.  We talked about basals, and I asked him how his numbers have been. 

"Pretty ok." he said.  "Not great. Not horrible."

"When was your last low?"  I asked.

"I can't remember."

Which is great.  But if you can't remember when your last low was...then maybe you are running too high.  This is the first time in awhile that "I" have changed basals for him.  Usually it's our endo who changes it up.  They have some kind of great system, because his A1C's have been great in the past.  But it seemed logical to me that if B and L have MUCH higher insulin needs right now...so must J.

Time will tell.

Blah.  I want answers now.

Patience is a virtue I'm learning to tolerate.  (Man that sentence is the story of my life.  For serious!)

The boys went to bed 87, 102 and 79.  They had a bit of a snack and now I'm off to see if we nailed it or not.

God, grant me the serenity to accept the basals I should not change, the courage to change the ones I can...and the wisdom to know the difference.

That should be on a T-Shirt.

That is all.

12 comments:

  1. Excellent post! And I love the modified serenity prayer! So perfect, and I would buy a t-shirt. :)

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  2. I too need that Tshirt! We are opposite in the summer with lows, good riddance to the stress of the school day I guess! Good luck on this new basal "trip" I hope you find your way there QUICKLY!

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  3. What an eye opener. Your writing is beautiful...and your substance brings a whole new awareness to type I diabetes for me.

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  4. I would buy the t shirt too! ... along with "How to parent a child with a chronic illness classes" from you! Seriously, you are an amazing mom, Meri! I love how you talk and TEACH your boys! This is why I read your blog - to LEARN how the heck to do this. You really give them what they need to do it on their own (with you and Ryan as huge support). I know reading your blog is one of the big reasons I'm giving my little guy a big push way before I thought I would. Good luck with the summer adjustments on basals!! .. we are in the just high phase over here.

    Continued prayers for each of you!

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  5. Part one summer holiday basal tweak done this evening, thanks for the prompt Meri!

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  6. Oh gosh..when are we supposed to teach them to adjust their own basals? I need that class too! I have to figure out if Mary Claire's body is going to go higher or lower this summer..it's sending me mixed messages!! Hugs, girl! : )

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  7. Thanks for the reminder Meri! I haven't sat down to analyze BGs recently, and as I was reading your post, I realized...we're also running high! Gonna go download Dexcom now and see what needs to be tweaked. I seriously wish you all lived closer...your fun personality shines through your writing! :) Hugs from Brooklyn. :)

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  8. Ugh, basal changes are sucky, for sure!!
    Thankfully, Bean's been cruzing pretty nicely on the 'weekend' setting she needs during the school year for the few weeks she's been out of school.
    Totally, totally want that on a t-shirt!!!

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  9. Ahhh Meri you are such a rock star. I'd take one of those t-shirts for sure! And you said it perfectly, "Patience is a virtue I am learning to tolerate," story of my life! I had a friend not too long ago, who teaches yoga, ask me to sign up for his weekend retreat - I laughed and said I practice peace and patience ALL DAY LONG with parenting my two boys, instead I need kick boxing to get out the frustrations and irritations in a rational way! Have a great week :)

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  10. DUDE...I SO.SO.SO need to do a basal assessment on Joe. Haven't done one in 4-evah. Love how J and his endo tweak...and your gentle talk with him. Very endearing.

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  11. I was just looking at cool diabetes T' the other day for my kids to wear to T1D camp in July because of the animated one, "Type Awesome" at the top of your page. (Does one really exist because I could not find one.) I would definately get a basal (and a bolus) one like you came up with.

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